If you can help in any way or would like to participate, please contact the EAA Office on 1300 300 182 or at help@eczema.org.au. We’re presenting the plight of eczema sufferers to the public in an effort to make the public more aware of just how many people suffer from the skin condition.
We love talking to our members and are amazed at the incredible stories of love and resilience we hear from eczema sufferers and their carers every day at the Eczema Association of Australasia Inc. We want to hear about your own or a loved one’s experience with eczema!
Please get in touch if you’re open to having your story heard.
Email us at corporate@eczema.org.au
Itchy, dry skin.. you could be one of the more that 1million Aussies suffering from Eczema. Just one of a number of skin conditions that can make life very uncomfortable for sufferers, as Cheryl Talent from Eczema Association of Australasia Inc explains. Great Lakes FM 101.5FM
This publication from Professor Irwin McLean’s group, shows that lack of the protein filaggrin in the skin caused an inherited dry skin condition known as ichthyosis vulgaris that is strongly linked to the development of atopic eczema. More studies have confirmed this finding and at least 20 loss-of-function mutations (changes in a gene that prevent it working properly) causing filaggrin deficiency have been discovered in many different racial groups. Filaggrin deficiency has also been linked to more severe atopic eczema and to its persistence into adult life.
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Eczema is a chronic condition. That means it is not curable and has to be controlled. It is a condition where the skin is constantly inflamed. For over 50 years, topical steroids have been known to be highly effective in controlling this inflammation. There is no other medication that works as well or as efficiently. One of the main functions of skin is to maintain a barrier to the outside world. In eczema the barrier is damaged. Steroids rapidly repair the damaged skin barrier without irritating the skin.
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Although many people think an emollient and a moisturiser are the same thing, they aren’t. An emollient is one of the ingredients in a moisturiser. The other ingredients in a moisturiser bring water into your skin. Emollients are the part of a moisturiser that keep your skin soft and smooth. Emollients have been used for over 5,000 years and they form an essential part of the therapy for all dry skin conditions, including atopic and contact eczema. Emollients are safe and effective and, in the majority of cases, mild to moderate eczema can be successfully treated by using emollient therapy alone.
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One in eight children have eczema at one time or another as do one in twelve adults. Some of the latter are adults whose eczema has lingered on, while others will have eczema for the first time in adulthood. Some people will have had eczema for the first time as babies or young children and then experience several years of remission only to have the eczema re-appear suddenly and sometimes severely in their adult years. Since one of the homilies that seems to have attached itself to the condition is “you will grow out of it”, it is small wonder that adults with eczema become quite desperate.
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The teenage years can sometimes be the worst for people with eczema. This is not because the condition gets worse at this time: it can get better. As the skin gets greasier the eczema often improves and it is not uncommon for someone who has had eczema severely as a child to become much better at puberty while his non-eczematous friend discovers zits in a big way!
On the other hand, some people find that they have been free of eczema for a while only for it to come back in adolescence: others develop the condition for the first time during the teenage years. It is a very individual condition.
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There are different skin disorders, some of which can start very early on in life, such as cradle cap. This thick scurfy scalp can appear soon after birth or when the baby is a few months old. It can develop suddenly. The scalp becomes coated with greasy yellow scales that stick to the head giving a crusty appearance. This scaliness can affect other parts of the baby’s face and head including the forehead, temples, eyebrows, behind the ears and in the neck folds. The skin underneath the scales may look sore, but it is not a condition that causes discomfort or itching.
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An explanation of the relationship between infection and eczema including causes and treatment. Skin affected by eczema tends to develop small cracks and fissures on the surface. This provides entry points for bacteria, which cause infection. Infection makes eczema worse and treatment more difficult. The skin can become more cracked which leads the way to further infection. Breaking this cycle of infection is the key to successful treatment. Both contact and atopic eczema may become infected in this way.
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Ear eczema can be an extremely irritating and, at times, painful condition. It can range from slight dryness of the pinna (the visible, projecting part of the ear) to extensive skin loss and soreness, as well as infection of the external and internal parts of the ear.
Eczema can affect the entire ear including the ear lobes, conchal bowl (the area outside the ear-hole), the ear opening (meatus), ear canal (also known as the external auditory canal – the part of the ear which leads to the ear drum) and the ear drum itself (also known as the tympanic membrane).
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Why do it? Many people carry bacteria called Staphylococcus aureus on their skin. This is particularly common in children and adults who suffer from eczema.
Eczema is an itchy skin condition, often worsened by a bacterial infection. Staphylococcus aureus can contribute to the flaring of the eczema and to ongoing skin inflammation. Complete eradication of Staphylococcus aureus in patients with eczema is very difficult, however some therapies can reduce the number of organisms which live on the skin.
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I joined the Eczema Association of Australasia after becoming desperate for an end to my itchy, red skin. I was first diagnosed with eczema around the age of 20 and prescribed a mild steroid cream for the rash on my chest. The rash cleared and the unfinished tube of cream sat idle in my bathroom cupboard for years. In my late twenties and thirties, I occasionally developed a small patch of dry skin, which I sometimes treated with a topical steroid cream or with a non‐steroidal emollient. It wasn’t until my early forties that my skin rash become problematic.
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The Eczema Association of Australasia Inc (EAA) collected responses for its Eczema Sufferer Survey over 25 years. The survey was conducted in pen and paper format and via online form.
Eczema is most commonly diagnosed at or soon after birth; 53% of surveys indicated that the condition was diagnosed between the ages of 0 - 6 months. A further 11% were diagnosed before their first birthday, meaning just under two-thirds of all eczema suffers are diagnosed between birth and 1 year of age.
A little over half current sufferers said that eczema moderately affect their daily life. With only 19% claiming to have no affect.
Just over half of eczema sufferers (52%) must also be conscious of environmental and physical triggers that worsen their condition. Of those whose condition is triggered, the weather is the biggest issue for them (72% of those whose condition is triggered). After weather, the biggest triggers for many are stress (57% of respondents mentioned), food (51%), soap (48%) and grass (36%). It is clear by the fact that many respondents chose multiple triggers, that for each individual there are a number of things to be conscious of and avoid.
A little over half of current sufferers describe their Eczema condition as Chronic. With just 6% claiming their condition is Controllable.
